tag:blogger.com,1999:blog-35539029362362914612024-03-12T21:51:04.671-07:00Miranda's MiraclesMiranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-3553902936236291461.post-22440106650158142952012-01-10T19:44:00.000-08:002012-01-10T19:44:03.259-08:00Happy 2012It’s been a while since I’ve posted so Happy New Year everyone. With the holidays and my ‘complication’ it’s been very busy; however Christmas was wonderful. It wasn’t a white Christmas, and actually pretty warm for December in Kansas, but it was fantastic. Delaney really got into opening presents, and when I wrapped them, she automatically thought she should unwrap them. It was very funny. She would get so excited when she had a gift and would tear into it them she’d go for the next, even if they weren’t her gifts. She also loved decorating the tree and thought it was a really neat game to hang the ornament, then take it down, and repeat. The older kids made out like bandits and I think everyone truly enjoyed spending time together. <br />
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Due to my skin graft my surgeries had to be postponed until I fully healed. As a result of this set back, I decided to reconsider having the hysterectomy in Houston. I asked Dr. Truong for a recommendation and he suggested I visit Dr. Morgan a gynecological oncologist in Wichita. So I had a visit right before Christmas and really liked her. She’s very open, honest, and easy to get along with. After our visit, I decided to go ahead and schedule the surgery sooner rather than later. Dr. Morgan thought there would be no issues having the hysterectomy before the reconstruction and agreed that getting out the potential items that were susceptible to cancer was better then leaving them in. So the surgery is scheduled for January 23rd at Wesley. I’ll be relieved to get this preformed and have the pathology back to reiterate that I’m completely cancer free. <br />
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The reconstruction should be able to take place sometime in March. I will more than likely need a follow up surgery after the implants are placed, to correct and make the final products look more uniform and real. During the reconstruction in March, I’m hoping Dr. Bauman can loosen the muscle under my arm where the lymph nodes and skin around the tumor were removed. He thinks he can help ease this discomfort, as it feels like a pulled muscle constantly.<br />
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Due to the skin graft I do now have a large oval shaped scar on the top of my right breast; so I’ve been considering having it covered with a tattoo after the healing is completely done of course. What I’m considering is a Pink Koi fish and pink butterfly around a cherry blossom branch. Inside the Koi and butterfly, would be pink ribbons. There is a lot of meaning behind the tattoo as the Koi represents perseverance in adversity and strength of purpose. Being a cancer survivor I have realized my purpose in life is to leave the world better then when I arrived. To help people know the truth of eternal life and to lead by example. The Kio also translates as "love" in English and is said to bring luck. Since Love has helped me fight the diagnosis, this is very powerful. God is love and through his love and the love of my family and friends, I’m in remission. Through God’s continued blessings, I will remain in remission. <br />
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The Butterfly represents endurance, change, hope, and life. It also is a sign of the life struggles that one has endured to emerge as a better person. As I’ve stated before, I truly feel like cancer has made me a better person. I really started living life as I realized how quickly it could be gone. I began appreciating the little things; I often overlooked the simple beauty of earth. The butterfly signifies rebirth and helps one to remember to take time and appreciate what we have and what really think about what we hope to be. Taking chemo, I had a chance to think a lot and hear stories of other survivors. The one thing I can say for certain, is I’m so grateful I’m a Christian because I know when I die, I will actually just be beginning to live my eternal life with the father. I often take for granted that others are Christians and know this truth; because I was raised with faith it’s second nature to me. However many people don’t know the peace God’s promises bring. <br />
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There was also a butterfly garden at MD Anderson and the meaning was very impactful. The plaque explained the project and said that butterflies and cancer patients were on the journey to hope and healing. I’ve included a link on this garden: http://www.texasmedicalcenter.org/root/en/TMCServices/News/2006/12-15/Butterfly+Garden+Celebrated.htm <br />
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The Cherry blossom signifies overcoming an obstacle in life. It is also a sign of femininity and beauty. Of course the pink ribbon is for breast cancer awareness. Putting all of these together on my ‘ugly’ scar and transforming it into a beautiful constant reminder of what I’ve learned through this journey, the love I have for God, my family, and friends, and to never give up. It will be a visual cue to always keep fighting and to help provide others strength in times of adversity. I haven’t decided undoubtedly that I will get a tattoo, however it’s something I’m seriously considering even though it may seem out of character for me. Mom bought me a shirt that says “yes these are fake, the real ones tried to kill me”; I thought this was funny and pretty much tells my story. <br />
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This battle has been a journey to self-discovery and has enabled me to have a deeper understanding of my purpose. Although I’ve faced low periods, I know when I needed him most the Lord carried me through. 2012 is the year of living life to it's fullest and being cancer free. Thank You God for My Continued Healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-67541183497231773022011-12-05T21:41:00.001-08:002011-12-05T21:41:58.862-08:00Skin GraftI just wanted to put out a quick update. Saturday a week ago, I had a complication. Ended up in the hospital in Houston. We got back home Wednesday. On Friday Dr. Bauman called and wanted to see my first thing today. He also thought more than likely I’d have to get a skin graft. So mom and I arrived in Houston last night. <br />
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We went into the clinic at 8 am and I was in surgery by 1:45. I ended up with a skin graft from my scalp. The reason my scalp was used as opposed to my groin or thigh is for a few reasons. The first being that skin from the donor site in the upper part of the body would match my skin better. Secondly, it heals faster; thirdly, I don’t have to wear clothes on my head which could rub against the wound (I can wear a scarf or wig still to cover it somewhat though) and finally, Delaney is less likely to bump it on my scalp as opposed to my leg. She likes to cuddle, and to be held, so this was a very important reason for the decision as well. We asked if my hair would grow back and he said yes. So I chose to have my scalp used as there were many pros and few cons except its exposed more. However this too proves to be a pro as they want the wound left uncovered after 72 hours. Although both my scalp and breast look pretty wicked right now, they will soon both be healed. <br />
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I didn’t see Dr. Bauman after the surgery, however he spoke with mom and said the wound was deeper then he thought and was starting to get into the fatty tissue. It also wasn’t healing on its own; therefore it was even more critical that he performed the procedure before it infected the expander. I am in the hotel now. I will have to come back here next week for the stitches to be removed.<br />
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I still can’t believe this odd occurrence is happening; but as I’ve said several times now “At least I’m cancer free, so this isn’t life threatening, so I can deal with it much easier” I know God helps us and I know he has a plan. I believe this complication occurred as I needed it in order to help someone else in some way. Either during this trip, or some other time in my life, this was a necessary step in accomplishing this goal from God. This entire journey he has been with me and my faith has deepened through knowing it’s his plan. I’ve been much better at ‘letting go” and letting him handle what I have no control upon. Thank you God for my healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-46982521675959674662011-11-28T18:52:00.000-08:002011-11-28T18:52:17.696-08:00ComplicationIt’s almost funny, the below was the post I was working on Saturday before a ‘complication’ arose. At about 5 pm I noticed my right breast had developed a large blister. It large, covering about 20% of my breast and filled with fluid. (Very yucky and I have the photos so we can remember what it looked like and see the healing) I immediately called my reconstruction surgeon and was connected with the surgeon on call. He asked me to send a photo. Upon receiving it he directed me to go to the ER. He spoke with Dr. Wilhelm and it was decided that I should begin IV antibiotics. Dr. Wilhelm let me do it out patient as it was every 12 hours. I had two treatments at Kiowa and then Dr. Bauman emailed me and thought it would be best that I come to Houston. Stephen and I left around 11 am on Sunday. <br />
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Today I saw Dr. Bauman. He said he’s never seen anything like this and thought it was best to admit me to the hospital, put me on two different IV antibiotics, have a few other doctors’ visit, get an ultrasound and labs, have the wound dressed and treated several times a day, and see what happens over the next 24 hours. We’re hopeful that the area will be somewhat better by tomorrow and then I can be dismissed. <br />
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Dr. Bauman decided to drain the blister and remove the top layer of skin. He did this in office as thankfully I can’t feel anything in that area since my mastectomies. The fluid sample they took from the blister came back as sterile and apparently that is good. The wound doesn’t appear to be getting worse and Dr. Bauman will visit again tomorrow morning. I will receive another round of IV antibiotics around 2 am and we will see how I look. I asked about having surgery still on the 16th and originally, this morning Dr. Bauman said NO. Tonight however he wasn’t decided, so I said let’s just see how it looks tomorrow and then decide. So the surgery is uncertain at this point and is dependent upon the healing of this wound. <br />
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It’s so crazy that this happened as it’s such a bizarre thing. The cause isn’t known. It could be an allergic reaction, a burn (which I find odd as I would think it would have burned another areas too), or possibly some other random occurrence. They say we will probably never know the cause for certain……… What we do know is that the expanders do not appear to be affected right now. That is why they are so aggressively treating me as apparently if it gets into the expander it has to come out and heal, then be put back in at a later point. Right now they think it’s a surface wound, which I’m told is a positive. <br />
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Things can drastically change in a matter of minutes with this process however I am very lucky that this is really the only complication I’ve had thus far. I count my blessings daily as this entire journey could have been much more daunting. Thank you God for my healing.<br />
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<b>Original post from Saturday: </b><br />
It’s been a while since I’ve posted which is good as not much has happened. I’m still in remission, just getting my expanders filled, and trying to get my surgery schedule finalized. I was very blessed to find a plastic surgeon in Wichita. He was recommended by a member of my church family and his name is Dr. Tamir. He specializes in wound care and is truly an amazing and caring doctor. His staff is also exceptional. He agreed to help me with my expander fills. I ended up only needing to see him one time however that experience was wonderful. <br />
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Mom and I went back to Houston for a post op. The day before we met with Dr. Bauman I got a call from Dr. Lu’s office, my gynecological surgeon, and they had scheduled surgery for 12-16. Wow, was I surprised. When I originally asked about having surgery before the end of the year the teams acted like there was no way. Since there were two surgeons that only had Fridays as the same day for preforming operations, there were also many people trying to get procedures done before the end of the year, and my expanders needed to be fully expanded for a minimum of one month. Looking at all these factors, the doctors really didn’t think there would be openings until probably late January. So I wasn’t prepared to have the hysterectomy and the final reconstruction so close to Christmas. We weren’t sure if my expanders would be in place for a month so we confirmed that this was Ok with Dr. Bauman. He said that I could only have one more fill as my skin was getting too thin. He said maybe I should take this as an omen; that the stars aligned as he never would have thought things could have fallen in place for the surgery to be scheduled before the end of the year. <br />
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The 16th is awfully close to Christmas but if there are no complications we should be home by the 21st. We’ve been trying to decide how to best arrange this surgery trip and I think we’ve decided that Dad, Mom, and Grandma will go with me to Houston. Stephen will stay home with the kids as they have a lot going on with the Christmas Holiday break starting on the 16th. Then Stephen may take some time off or work from home for a week or so after I get back as I can’t lift over 10 pounds and Delaney is well over 20 pounds. It will be nice to bring in the New Year nearly done with surgeries but it also brings stress as the Holidays are already so busy. Since I decided to leave my worries with God and go with his will for my surgery, we’ve decided to go forward with this date and make the best of it.<br />
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We were able to reserve the large house we stayed in last time. It is very comfortable and as Ann, the previous owner and Cara’s Mom who currently owns that house says, “It’s filled with love and healing.” Both she and Cara are cancer survivors and now I’ve joined those ranks. I feel very blessed that the home was available as we are comfortable there, it’s easily accessible to the hospital, it’s a very safe area, and there is plenty of room for everyone. Thank you God for my Healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-35535945258289596072011-10-18T19:28:00.001-07:002011-10-18T19:28:26.739-07:00RemissionWent to Dr. Greene, my MD Anderson Oncologist today. Got a good report and I am officially in remission as of Oct 4. Praise God. One odd thing though, is that after the final pathology came back, 20% of my tumor showed hormone receptive cancer as opposed to triple negative. So I actually had two different types or forms of cancer. She said it happens but it seems odd to me? I guess when they do the biopsy it only takes a core of the tumor so the entire tumor isn’t analyzed until it’s removed. As a result of this pathology finding, the doctor wants to put me on Tamoxifen, as it reduces hormone receptive cancer reoccurrence so could help me by about 30%? Or at least my oncologist tells me this. <br />
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She said it is actually good news; not so sure having two types of cancer is good news, but I’ll go with her theory, as there is additional treatment, such as Tamoxifen, they can do with me so that I can reduce my rates of reoccurrence. I’m very happy that I have this option; just surprised to have both triple negative and hormone receptive cancers. I’m just unique I suppose. When I told one of my best friends Sue she said I always was an overachiever and that made me laugh. God made us all different, and it makes the world a more interesting place. So I just keep making is more interesting is suppose. <br />
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Also I’m told my chemo was extremely effective as I only have 5% residual cancer; she said that is microscopic in the cancer world so chemo did phenomenally well for me. Oh the world of cancer, I learn something every day about this disease. J I’m happy though to be officially CANCER FREE…… Yeah. <br />
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I’m doing pretty well overall; I still have stitches. I am also finding reconstruction is going to be a daunting process; however being cancer free is wonderful. I hope to get surgery dates when I see my reconstruction surgeon tomorrow and gynecological oncologist Thursday. I have mixed feelings about doing surgery before or after the New Year. If I do it in early to mid-December, I will be done with this all and 2012 will be start fresh. A new chapter so to say for 2012. I also won’t have to pay that darn deductible again. Stephen laughs at me for this reason; however my oncologist said it today and when I had my ultrasound today she mentioned the same reason and said she’s heard that a million times as Cancer is expensive. LOL <br />
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I also don’t want to be hurried and pushing the reconstruction process or for us to be overwhelmed during the Holiday season. So I’m really torn on what to do and when to try and get them scheduled. So I’ve been praying for my doctors to have the guidance to know when to schedule surgery that is best for me. God always knows the right answers and has answered prayers thus far, so I figure I’ll give this up to him as well. J it really takes the weight off of my shoulder when I do this and through this incredible experience I’m really learning to listen to him and fully trust in his will. <br />
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We come home Friday and are so ready!! It seems like we’ve been gone for so long. Although the outcome has been successful; being gone from the kids has been hard. I’m so glad that we have such a loving, supportive family and community so that we can leave when necessary but know our children are well taken care of. Dad has done a fantastic job with Gavin and Arrington and Grandma and Grandpa Gillig helped so much with Delaney. Also the cards of support and encouragement that have been sent to Houston have been so uplifting. It seems they always arrive at just the right time.<br />
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Both Gavin’s and Arrington’s class also sent me cards or drawings. They were so sweet and I know that years from now we will look back at these and smile. It is so wonderful to know that the kids are being supported so thoroughly during this time as well. We imagine this is hard on them. All the changes and our time away. We try to include them. To be open and honest with them, to the degree that will not scare them but they will understand and feel secure. It’s a fine line sometimes however so we pray for divine wisdom for these conversations as well. This is similar to our adoption talks, as we want to say the ‘right’ things but as parents we don’t always know what those are. It’s kind of funny as when you are a kid you think your parents know everything but as parents often times we think we really don’t know much. Thank you God for my healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-55981164481794743832011-10-12T16:24:00.000-07:002011-10-12T16:24:05.521-07:00PathologyGot pathology back today; lymph nodes have <b>NO </b>cancer. Yeah. Also the chemo killed all but 5% of the cancer within the tumor. Yeah. However they are still up in the air on radiation. Yuck. They have a radiology committee meeting Friday and are going to discuss my case and give me their recommendation Friday afternoon. I don’t want radiation but I don’t want the cancer to come back either. So please pray for God’s guidance in my doctor’s recommendations. <br />
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I want to be sure I've done everything possible to prevent a re-occurrence however radiation will cause me to be in Houston for at least six more weeks and delay my reconstruction and hysterectomy. I've decided to try and give my worry to God as ultimately he makes all the decisions anyway. I am praying for him to guide my decision, as ultimately i can choose to have radiation even if the doctors say i should have it, and I pray I have the inner peace to know that my decision is his plan for my life. <br />
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As I ponder the past several months, I am surprised how quickly they have gone by. They say time flies when you are having fun; however I wouldn't consider these months fun but they certainly have been enlightening and a learning opportunity. God has shown himself in my life in ways I could have never imagined and he's given me glimpses into his plan for me that would I not had been diagnosed with cancer I might not have ever realized or known. Life has a funny way of working out, even if we don't think it's for the best at the time, it turns out to be part of the plan. Time seems to heal all wounds and helps us grow with knowledge and peace. I know that when I look back at this experience in a few years, I will see things differently but ultimately I want to keep a positive outlook through all this. Thank you God for my healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-45993655181340278272011-10-10T22:21:00.000-07:002011-10-10T22:21:39.836-07:00RecoveryWell we’ve been in Houston for almost two weeks now. I had pre op appointments last Wednesday and mapping and anesthesia on Monday. We were planning to leave all the kids at home and for Dad to bring them this Thursday, but we ended up taking Delaney as Jon and Tori were going to Houston for a friend’s dad’s 60th birthday party so they were able to bring her home on Tuesday Oct 4. The day of my surgery. <br />
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Dad is planning to bring the kids to Houston this Thursday so they can visit. Delaney will stay but Gavin and Arrington will go back on Sunday or Monday as they need to go to school. We’re trying to find someone to ride with Dad, as taking all three kids by himself would be a challenge. I’m sure it will all work out but pray that someone will be available to help him with the trip. <br />
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We enjoyed our time in Houston before the surgery and also attended our friend’s dad’s birthday party. I was best friends with his sister Nicole and Jon was best Friends with Jason when we lived in Pearland. We hadn’t seen Stacey, their dad, in 20 years. Jason lives in Kiowa now and works for RSI but I hadn’t seen his sister Nicole in probably 18 years. It was great to see them all again. Then on Sunday we went to their beach house in Freeport and spent the day reconnecting. Delaney got to play in the ocean and she loved it. She was covered with sand and even thought she’d taste it (however it turned out she didn’t like it) the look on her face was priceless though. <br />
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I checked into the hospital at 5:45 AM on Tuesday Oct 4th and was in recovery by about 1:30. All went well and it did not appear that the lymph nodes had any cancer; however they had to be sent to pathology and those results should be back by Wednesday. They also had to take a little extra skin on the right side where the tumor was as the doctor wanted to be safe as opposed to leaving even one tiny cancer cell. I’m glad she made the choice to be cautious as I never what this disease back. The reconstruction doctor said taking the extra skin wouldn’t affect the outcome so I’m hopeful that turns out true.<br />
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When I woke up I was in extreme pain. It hurt to breath; they were concerned they might have punctured a lung when they did my spinal block. So X-Ray was called in. Of course my lung was fine, thanks goodness; however the pain wasn’t under control. It literally hurt to breath. Since I’m allergic to so many pain medications, it was hard for them to find something to give me. Dr. Truong had given me NUCYNTA for the tumor pain. However the pain management team could only give that at MD Anderson. So they were called in. In the meanwhile they gave me morphine and it did not even take the edge off the pain. Finally they gave me something stronger and it worked. The issue was however that it was only available via IV. I couldn’t go home with it so I had to have the pain management group evaluate and make a plan for me before I could be released. For a while we were not sure it if was going to get to go home that day or have to stay another night; I wanted to go home as one night in the hospital was enough for me because they wake you up every few hours and it is just really hard to sleep. The pain management team ended up doubling up on the Nucynta and gave me a few other pain controllers to make the pain tolerable. Believe me, it’s always there, and I have not been pain free, but I can at least function, somewhat. Before they found something that worked I was literally in tears just from breathing. <br />
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I came home with four drain tubes. I’m hopeful they will come out on Wednesday which is when I have my follow ups with reconstruction, surgery, and radiology. We will also find out during the follow ups about my pathology as hopefully it will be back by then. The drains are very uncomfortable and are held in place with stitches. I also have stitches across my breast, I’m told these won’t show much once the reconstruction is completed but right now it looks pretty brutal. There are also stitches under my arm where they took my two lymph nodes. So I sort of look like Frankenstein. It’s very interesting taking a bath, as I can’t get the antibiotic stripes on the drain tubes where they enter my ribs wet so we put that saran wrap that sticks to anything on over the drains. Dr. Bauman told us about this and it works surprisingly well. It’s also a full time job keeping up on the medication I have to take. It’s something every four hours with most times several medications at once. For the first few days home from the hospital I could barely function. I couldn’t hardly see, read, or type. Talk about horrified, all I could do was lay around and watch daytime TV. Yuck. By today though I’m much better and have been able to decrease some of the medications which make me able to function better. However if I have to choose between that pain and functioning I’ll give up the functioning until I’m better as that pain was almost unbearable. <br />
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Mom and Stephen have been taking turns cleaning the drain tubes, as we have to do that in the morning and evening. Then we have to write down the output amounts and also take my temperature. With this info, we take it to the doctor and if it’s under 30 ML for two days in a row my drains can come out. So I’m pretty sure they will be removed on Wednesday. The drains make it very difficult to sleep and they also get easily caught on things, so I have to be extra careful and we all know how clumsy I am. Having them removed will be such a relief as I will actually be able to sleep on my side again. Yeah<br />
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I did have a post op follow up on Friday with Dr. Bauman and he said things are looking good. He did put me on an additional antibiotic just to be on the safe side as there was some redness but other than that everything was OK. They also put some fluid in my expanders and they will put some more in them this Wednesday too. He said if all goes well, I could have my final reconstruction in two month, which would be great as I’d like to have all this done before the New Year. During my reconstruction I will also have my hysterectomy and then this chapter should be closed. Thank God. <br />
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The house we are staying at is great. It’s very spacious and comfortable. Ann, the ladies mom that owns the home came and visited Sunday. It was wonderful talking with her. She then brought us dinner on Saturday. I’ve also received several cards and flowers. They are so pretty and smell so good. Overall the experience has been different then I expected but not necessarily worse. I’m just grateful that my pain is under control and that I appear to be healing well. I’m anxious to get my pathology results, and I’m hopeful that they will be negative so that I don’t have to have radiation. It doesn’t seem like we’ve been here almost two weeks already but I guess times just flies. I appreciate all the prayers and I truly can feel everyone’s love and concern. Thank you God for my Healing.Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-6479506036915806842011-09-21T18:32:00.000-07:002011-09-21T18:40:04.550-07:00Surgery TimeOur vacation was wonderful. Relaxing and cool. River rafting was a blast. I loved it and no one fell out of the boat. The sulpher springs were interesting. One of those things that was an experience but I wouldn't go out of my way to do it again. It was nice to be able to just be with nature and enjoy the scenery. It was very easy to see all of God's creations and the beauty they behold. It's the simple things I've learned to love and appreciate since this diagnosis and part of this is just being. Of course we missed the kids, but they had a great time with Grandma Barb and Grandpa Steve. They were happy to see us when we got home and I think we were all ready to be back in our own beds.
Time seems to fly and the surgery date is almost here. I finished my last chemo treatment on September 1. I was supposed to have chemo on August 29th however my count was too low; therefore I had to take injections for three days, and get retested on Thursday. Luckily the medication did the trick and I was able to receive, what I hope to be my final chemo treatment in my life. (I’m planning for the best and thinking positive as I don’t want to do this again). We are scheduled to leave Tuesday September 27th. I have pre op visits on the 28 and 29 and mapping on Oct 3. Then the surgery will be Oct 4.
I’m anxious to get this over with but I’m also very apprehensive to leave the children for three weeks. Dad plan to cares for Gavin and Arrington and Grandpa Bev and Grandpa Bert will take care of Delaney. I’m hoping they will be able to come to Houston for a few days around Saturday October 8th and then Delaney will stay with us and the older ones will go home on Monday as they have school. I’m concerned that they will have adjustment issues, as this is a large stressor on everyone. Please pray for them that God will provide them comfort while their Mom, Dad, and Grandma are away. I know this has to be done, as I want the best outcome possible, so I’m going to the best doctors in the country, however it hurts just thinking about leaving them for so long.
We won’t know about radiation until 5-7 days after the surgery as apparently it can take that long for the finally pathology report to come back. I just take it one day at a time, as if I have to have radiation, then that is another 6 weeks in Houston. I can’t imagine it, but I will do what it necessary to be here for the long term. It’s my life we’re fighting for so I can’t sit by and not do my best to save it.
I am lucky enough to have a cousin, Morgan, who lives in Houston and works at MD Anderson. She was gracious enough to look at some apartments for us and we were about to rent one however at the last minute things changed. We were so blessed to get a wonderful house in Houston to stay at. Stephen’s mom’s friend’s daughter lives overseas and they lease their home while they are away. However they have allowed us to stay there during this surgery for a very minimal charge within our budget. It’s a beautiful home with plenty of room for the kids to come visit. It looks very comfortable and clean. We are so pleased that we will be in a nice safe area and are able to enjoy a home that will be our second home for several weeks. I was stressed over finding a living arrangement that would work, so this is a huge relief and an answer to our prayers. It’s different then going to a place for a few days, we’ll be there at least three weeks so we needed kitchen facilities, space, and most importantly somewhere clean and comfortable for me to recover. This has all that and more. Many thanks go out to my mother in law for helping us get this home and to her friend Ann and her daughter Cara for allowing us to stay here.
I have been working on getting precertification for my surgery for a week now. You’d think MD Anderson would have done this already, as the surgery has been scheduled since March, but for some reason they waited until the last minute. It was rather funny today when the representative called me as she said they didn’t have a produced from Dr. Baumann the plastic surgeon yet and did I know what it would be. I thought, seriously, you are calling the patient when you could have walked down the hall to the doctor’s staff? That was totally odd to me, so I politely, or maybe not so politely, told her to call the doctor as I had no idea exactly what it was called all I knew is what was being done. I can’t stand not being prepared and I’m very surprised MD Anderson waited so long to get this pre-certified by my insurance.
Oh the fun of dealing with doctors, insurance, and Cancer. However I’m on the downhill slide and can’t wait for this chapter in my life to be complete. Things have been really busy, getting ready for the trip and finishing up last minute details; however the days keep ending before I can get it all done. Isn’t that the way life sometimes is? I’m just so grateful that we have so many family members and friends willing to help us. I don’t know how many times I’ve said this but support and prayer are critical to making through this journey positive and successful.
My post my shot feeling the stress but then I take a breath and <b>Thank God for my healing</b>.
Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-49470768487984626432011-08-22T08:28:00.000-07:002011-08-22T08:28:45.273-07:00Mountain AirNot a lot has happened since the last post however I did have treatment three of this cycle. I also was able to get acupuncture after the treatment so I thought for certain I would have minimal side effects. However, I was greatly mistaken. It hit me hard Wednesday night. Nauseous, dry heaves, aching all over, and exhaustion. All the fun of what you visualize chemo normally is. Luckily I had a doctor appointment with Dr. Truong on Thursday so when I saw him he gave me some meds that basically just made me sleep. Which was great compared to feeling like I had the worst flu I’ve ever experience. <br />
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By Saturday I was back with the living, and we had our family pictures at the church. Although it only took about thirty minutes, I was exhausted when we got home and had to take a five hour nap. I hate not feeling well, it feels like I’m out of control. But I guess I am. I can’t control everything so I must just give it up to God and let him take control. I’m willing to suffer a little for the greater cause of remission. I’m so glad I’m almost done with chemo. My last treatment is Monday August 29th. Although I’m dreading it, since Dr. Truong told me I’d probably have the same side effects, at least they only last five days or so then I feel much better. I will have 16 total treatments upon completion. It’s hard to believe I’ve done that many, and looking back it has gone very quickly.<br />
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It’s amazing how wonderful it is to feel good. If one has their health they have the power to change things and make their lives happen. It’s almost like I have a new lease on life now that I’m feeling better. I found myself singing and dancing at the strangest times, for example at work. I guess I just appreciate my health and am happy to be living the life I love and loving the life I live. Even when I was feeling completely rotten, the thoughts of those I met at chemo kept coming to my mind. How lucky I am to have family and friends that are so supportive and loving. The wonder I know by having faith, hope, and love. The privilege I’ve been given to express my faith to others through my story. I truly am a lucky woman. <br />
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As I mentioned in my last post, Stephen and I left for Estes Park Saturday. I am so excited to have some R&R. It’s wonderful up here and so cool. It rained yesterday and was about 56 degrees. The smell of mountain rain is fabulous. The mountains are amazing; where the temperatures are cooler and the air is crisper. Did you know that the Stanley Hotel is located in Estes Park? It’s best known for its inspirational role in Stephen King's novel, "The Shining". The interesting fact however is that the founder actually came to Estes Park due to poor health. So maybe going to Estes will also renew my health? We’re heading to the Hot Springs today and white water rafting Wednesday. I’m living life to its fullest and not taking time for granted anymore; a good lesson for all of us to learn and live by. Of course we hit the outlet mall yesterday. Thank you God for My Healing. <br />
Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-35780409858986383692011-08-04T05:35:00.000-07:002011-08-04T05:35:41.398-07:00Downhill slideWell I’m half way done with the FAC chemo. Or should I say I was half way done on July 20th. This second treatment didn’t cause me the leg pain as did treatment one however I was nauseous for over a week. I’ve made a call to Dr. Truong in hopes he can change my meds and help prevent this for treatment three which will be Tuesday the 9th. I also had flu like aching in my back and neck again. I told Stephen I felt like a bus hit me, and Gavin said “how would you know; you’ve never been hit but a bus?” It was so cute. I’m still facing fatigue but overall I have about a week of feeling yucky and then 10 days of feeling relatively good. The tiredness seems to hang on the entire time but the extent eases up on week two and three. So overall I’d say I’m doing pretty well and treatments could be much, much worse. I praise God for this daily. <br />
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We did visit Houston again last week for an appointment with the gynecological oncologist. It was interesting and to make a long story short during the initial appointment they were trying to talk me into waiting for the hysterectomy until I was at least 35 however after they saw my ultrasound they seemed to try and talk me into doing it. If the nurse practitioner would have let me have a word in edgewise I could have saved her a lot of back peddling as the funny thing is I always wanted to have it occur during the double mastectomy as my breast surgeon said it would be minor compared to what she’d be doing. Evidently I have cyst on both ovaries and my uterus. There is also a ‘suspicious lesion’ on my right ovary that they wanted me to do follow up on in six weeks. I told them there was no need as I was planning to get the hysterectomy in about 8 weeks so we’d see what it showed once it was removed. They will take out the tissue and then send it to a specialized pathologist that only deal with gemological cancers. They will then slice it into small sections and view each one for cancer cells.<br />
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The nurse practitioner tried to reassure me it was unlikely it was cancer and I told her that’s nice and all however I heard this same thing about my breast and we all know how that came out: Positive. I’m really not stressed over it however as what can I do now? Nothing so why worry. I’ve tried not to be such a worrier as I used to really stew over things I could not control. I’m told worry is lack of faith so I now try and hand it over to God as ultimately it’s all his will and in his hands anyway. <br />
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I can’t imagine being a non-believer? What would life be like; as I know when I leave this earth I’ll be with my heavenly father in eternal peace. I think life would be so scary to think that once we die we are done living. I am able to walk through life because I know I will have an afterlife in heaven and that is greatly comforting. I understand why many non-believers become so depressed when illness or death faces them as they have nothing to look forward too. This is why I’m often witnessing to those in chemo with me at Pratt as I want them to share the peace and know the truth that I know. God is always with me and if he’s on my side who can defeat me? I rest peacefully knowing that life doesn’t end on this earth as I’m promised eternal life in heaven. <br />
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We also decided to spend a week in Estes Park in mid-August. I’m looking forward to it; I’m ready to escape the unbearable heat and rejuvenate before my surgery. We are leaving the kids with Mom and Dad and this will be the first time in over two years that Stephen and I have gone on vacation without the children. I’m looking forward to sleeping in, reading a book undisturbed, and enjoying nature. I also decided I wanted to go white water rafting. I’ve wanted to go for a long time and figure there’s no time live the present. We are only going for a half day trip, so will only spend a few hours on the water, but it should be memorable. We are also planning to go to Hot Sulphur Springs and soak in the healing hot springs. It is said that the water is sacred; the Ute Indians believed in the healing qualities of the waters and referred to them as “big medicine” and “magic waters”. Ute tribal spiritual leader blessed the waters and the resort has been operation for over 140 years. I’ve read mixed reviews on the place, but I figure I can use all the healing I can get so we might as well try it. <br />
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As many of you know, I’m certainly not a mountain girl. I normally much prefer the Caribbean however I feel drawn to the mountains for this vacation for some reason. Through this cancer journey, I’ve learned to listen to my inner self so on August 20th we’re heading west to rediscover nature and get some much needed R&R. <br />
I believe that is one thing we all need to learn is how to better listen to our inner being. If we can be quiet and actually hear what it’s saying we might learn a lot and avoid situations where we later say I knew something was wrong or I knew better then to do that. God put that voice inside us, or maybe it’s God speaking to us, but either way becoming more in tune is important. <br />
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I know God has put us all here for a purpose and although I don’t know what mine is completely yet I do know I want to leave this world a better place than when I arrived. How to accomplish this, there are many ways, but one of the particular ones I’ve discovered through cancer is to enjoy and live life to its fullest. In an odd way cancer has been a blessing. An eye opening and life changing experience that I’ve chosen to use for the better and learn from. I try not sweat the small things. I try to appreciate all the joys around me and count my blessing daily if not hourly. I’ve decided to take my diagnosis and make it into a positive as I don’t want to be remembered as the young mom who had cancer but instead the strong, faithful, positive woman that learned to live life through cancer and is helping others do the same. Live the life you love and love the life you live. As they say, when life gives you lemons make lemonade and that is what I’m striving to do. Thank you God for my healing and for helping me live life to its fullest. <br />
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<div class="MsoNormal">As I sit back and think about how lucky we are to live in a free society some immediate topics come to mind.<span> </span>It seems like the news is always covering negative or controversial subjects but why is that: Because it sells.<span> </span>We as a free society have the right not to watch and therefore force the media to focus on positives.<span> </span>I’m also glad that we have the ability to see controversial items though as in many societies these are banned.<span> </span>However in America, we are FREE so we have the right to watch and say what might not be considered status quo.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I deeply appreciate the service men and women who put their lives on the line to give us our freedoms.<span> </span>Those that have given the ultimate sacrifice: their lives and those that continue to fight for our freedoms.<span> </span>We are truly blessed to live in the best nation in the world.<span> </span>It takes us however to continue our legacy and not fall behind.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Pastor Keith spoke about Jesus’ ultimate sacrifice for our eternal lives and asked if we are worriers or warriors? He said a warrior is one that takes positives actions to correct a negative situation.<span> </span>I can tell you I’m a warrior and I strive to be more of one each day.<span> </span>Over the years, I’ve had to choose to take this course as I too used to worry unnecessarily about things I could not control.<span> </span>As I’ve encountered more of these uncontrollable situations, my faith has deepened and I’ve realized I have to give my worry up to God and accept his will for my life.<span> </span>Did I always like or understand it; NO, but has it always worked out to help me be a better person and Christian; Yes.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Regarding my warrior status, I actually had a doctor tell me that I was too happy.<span> </span>He goes on to tell me he doesn’t like treating triple negative breast cancer as it’s harder to treat, comes back more often, and is deadlier.<span> </span>Well, thanks for that inspirational piece of information doc but what do you want me to do? Cry all the time and be miserable while I’m still here? NO way<b>.<span> </span>I’ve chosen to be happy.</b><span> </span>I want to be remembered as making a positive difference in the world not as poor Miranda with Breast cancer.<span> </span>If I’m only remembered for having breast cancer, I’ve drastically failed at becoming the person I want to be.<span> </span>I’m a warrior; I’ve always been one who just wants to make the world a better place.<span> </span>Now how I do that, I’ve never been really certain, but I know that my ultimate goal in life is to leave the world better then when I came into it.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I try and surround myself with other warriors; those that are fighting the good fight and making positive impacts.<span> </span>Of course we all have our negative or down days, but overall those are few and far between.<span> </span>That doctor I said was so surprised that I was too “happy’ for my situation was the plastic surgeon I was considering for my reconstruction, his name is Dr. Poggi in Wichita.<span> </span>I really got mixed feelings about him, in some ways his honesty was refreshing but in another it was gruff.<span> </span>I think I will work with him, at least on filling up the expanders, so I don’t have to travel to Houston every few weeks, but I’m not sure about having him do the final surgery or not with him.<span> </span>But I have time to decide as that will be 3-6 months after the October 4<sup>th</sup> double mastectomy.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">As most of you know, we also went to Houston last week. <span> </span>We had such a great experience with corporate angels and the Conoco Phillips flight was wonderful.<span> </span>It is direct and everyone is so nice.<span> </span>They also offer complimentary food and drinks; add that to the fact that they have their own terminals, we couldn’t ask for me.<span> </span>The one issue though is flights are only able to be confirmed 72 hrs. in advanced.<span> </span>So instead of coming home Thursday we had to stay until Friday to get on the flights. <span> </span>Dad thought it was probably due to the holiday weekend and another cancer passenger said he’s been flying with them since January and this was the first time he wasn’t able to get a flight.<span> </span>So probably the holiday weekend did make the difference, nonetheless we were able to utilize it and it’s wonderful.<span> </span>The only stressful part is not knowing if you can use it until 72 hours before you leave.<span> </span>Worse case scenario we’d drive but flying was so much better.<span> </span>I have to travel back to MDA the end of July to meet with the Gynecological Oncologist and I’m hoping we can take the Conoco flight again.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">We were met in Houston by a group called Ground Angels.<span> </span>These are volunteers that drive you from the airport to the hotel. Our first angel was Ron and our second was Bill.<span> </span>Both were extremely nice and it’s a great no cost offering for medical center patients as a taxi is $60 one way. Both Ground Angels and Corporate Angels not for profit who’s missions have helped so many.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">While in Houston, I also saw Dr. Green and got an ultrasound.<span> </span>My tumor has shrank, probably by at least a third, but we didn’t have the finalized ultrasound report so don’t have the exact size.<span> </span>Dr. Green said when she saw me before my tumor was protruding out of the breast but now she had to ‘dig’ for it to feel it so that is a very positive sign.<span> </span>I also got my first treatment of the FAC chemo.<span> </span>The chemo facility was great; private rooms with a bed and TV along with a chair for a visitor.<span> </span>It was very nice but I don’t remember much as it knocked me out. It also knocked me out for the next few days and I’m still lagging from it. I also had immense bone pain in my legs.<span> </span>I was speaking to another breast cancer survivor and she said she had that too.<span> </span>It’s hard to describe what it feels like but it is almost like restless leg with pain if you can image that.<span> </span>I even had to get up from dinner on Wednesday night and leave mom there because I couldn’t take the pain and had to get to the room.<span> </span>We were so lucky the hotel had a restaurant on site as we ate there 3 out of 4 nights because I just was too tired to go elsewhere.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also met with the reconstruction surgeon, Dr. Baumann.<span> </span>He was nice and has agreed to work with Poggi if I decide to go that route.<span> </span>Poggi told me that I didn’t need to go to MD Anderson as Wichita was just as good however I told him that’s interesting as the US News and world reports ranks MDA number one. He said they just have good marketing.<span> </span>So needless to say, I was a little put off by and even that much more grateful for Dr. Truong as he’s willingly working with any doctor I choose.<span> </span>Poggi said there was no difference between a gynecological oncologist and a regular gynecologist and he said any surgeon can do a mastectomy.<span> </span>Well that is probably true, but can any surgeon do it well and get as much of the breast and gynecological tissue as possible because whatever is left there is a possibility for cancer from it.<span> </span>I would love to have surgery in Wichita, and considered after talking with Poggi, but after a week of deliberation I know if my cancer came back and I had surgery in Wichita I would always wonder if I did it at MDA, the best cancer hospital in the World, would have I had a better outcome???</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I don’t want to second guess myself so I‘ve decided MDA is the only place to have it done.<span> </span>I’m very much going to miss the kids for three weeks, and we’ll have a lot of logistical planning to do, but we’ll make it work.<span> </span>It’s my life right so what choice do we have really????</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I appreciate the outpouring of support and have been told several people weren’t aware of the helping hands site.<span> </span>Krista set this up and it’s great so if you’re interested in helping, please visit it.<span> </span>At this point, I don’t have a lot of needs, but as I have some, I can post them and they will go out to all registered users. <span style="font-size: 9pt;"><a href="https://www.lotsahelpinghands.com/c/639924/login/">https://www.lotsahelpinghands.com/c/639924/login/</a></span><span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I know all the prayers and positive thoughts are working. I feel them in my soul.<span> </span>I know I’m blessed to be so supported and live in a free society.<span> </span>Many people in other countries are seeking this freedom.<span> </span>I have the right to choose my surgeon and in many countries that is not the case.<span> </span>We are so lucky to be in America the Greatest Country in the world.<span> </span>Thank You God for my healing and allowing me to be an American.<span> </span></div><div class="MsoNormal"><br />
</div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-74806105130145769052011-06-13T19:13:00.000-07:002011-06-13T19:13:32.170-07:00Live like you are Living<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">Time is really flying; I can’t believe I only have one more round one chemo treatment left. Dad took me today as Mom had VBS, and then I had an echo cardiogram.<span> </span>It was a long day but a good one.<span> </span>I’m so ready to be done spending my Mondays in chemo. I also won’t have to get injections three days a week or my blood drawn weekly, so that is going to be great.<span> </span>With the second round of chemo I only do the injections for my white blood cell count one time and only will have one blood drawn over the three week period.<span> </span>Round two chemo, FAC is what they call it, is once every three weeks. However, I’m told this next round is more powerful so I might have more side effects.<span> </span>I’m hoping they are wrong, and I have more blessing bestowed on me but only time will tell.<span> </span>I’m also very worried about traveling after taking FAC.<span> </span>I keep telling myself to stop worrying and give it to God, but these little thoughts keep coming into my head so pray for peace for me for the upcoming trip to Houston and the new chemo regiment. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I am getting nervous to start round two of chemo though.<span> </span>That will start on Tuesday June 28<sup>th</sup> and I will take that first treatment at MD Anderson.<span> </span>So not only do I start a new chemo regiment, that is supposed to be crueler, I will also be at a new chemo infusion facility.<span> </span>I really love Pratt.<span> </span>The nurses are so nice, and I’m so comfortable with them making having this treatment in Houston somewhat stressful to me.<span> </span>They want me to start in Houston so that I stay on schedule and so that Dr. Greene, my oncologist there, can watch how this affects me since it’s a higher dosage then what I’ve been taking.<span> </span>I will also meet with the Geneticist, Michelle Jackson to discuss dad’s PKD and its genetic tendency as well as to learn more about the Ashkenazi Jewish Founder Gene that was discovered I carried from the BRCA 1 testing. I will meet with the reconstruction surgeon while we are there too.<span> </span>So it will be a busy few days on top of the FAC chemo but I know we’ll be fine. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I see Dr. Truong on Thursday.<span> </span>Mom and I plan to leave on Monday June 27 and return on Thursday June 30 for Houston.<span> </span>We’re hoping we can hop a flight on the Conoco Phillips jet out of Bartlesville as they are involved in a program known as corporate Angels where they allow cancer patients seeking treatment to fly on their corporate planes when space is available. Kristi Molz told me about this and it’s a great option for me as they have a daily flight from Bartlesville to Houston.<span> </span>Then they work with Ground Angels to take patients from the airport to the hotel.<span> </span>Stephen will be keeping the kids and of course Grandma and Grandpa Gillig and Dad will be helping with the kids. </div><div class="MsoNormal"><br />
</div>I read an interesting post on American Cancer Society: “<i>So, I heard the <a href="http://www.youtube.com/watch?v=LxDkWBvxHEI" style="color: #674ea7;">song</a> today...don't even know the title...it's about the guy that finds out he has terminal cancer and is dying..and what would you do...etc.</i><br />
<i>I started to tear up as I listened to it. Now, it's not in a bad way...we've all had that moment where we said is this going to take me? And we've all said NO! We are going to fight this terrible thing. </i><br />
<i>I'm still fighting (as so far winning) but I have to admit that 2 cancers have changed my life. I spend a lot more time just watching my kids...whether they are just playing together or if they are each doing their favorite thing...I never appreciated being here and being able to just watch them before. </i><br />
<i>I look at the big picture more now than I ever did before... Anyway, I just had to say to everyone, what is your favorite thing to do...And have you done it lately?? If not, why not...just go and do it.”</i><br />
<br />
These ladies on American Cancer Society are so right. Why don't we just do what we love to do? It seems so easy but yet I know it’s so hard.<span> </span>Sometimes I think: what do I love to do? What do I want to do? It really takes me some thinking so I’m actually writing a list.<span> </span>I was able to do several things that I really <u>wanted</u> to do last year: Went to Jimmy Buffet, Key West, and The Eagles. Some other things I <u>want</u> are: Go see Fall Foliage with in the NE with my Mom, Go with Mom, Grandma, and Melissa to Amish Country in Lancaster, PA, Visit Europe, Don’t Sweat the Small stuff, Adopt a fourth Child, and taking dance lessons with Stephen.<span> </span>Those are just a few but a start.<span> </span><br />
<br />
I too have begun to notice the little things.<span> </span>The clouds in sky, the cool summer mornings, the funny things the kids do, the smell of freshly cut grass or a thunderstorm, and the amber waves of grain.<span> </span>I’ve also become so grateful for my life and my family.<span> </span>I’m so lucky to have the job I do that allows me the flexibility to receive treatments with no worry of job recourse.<span> </span>I’m so fortunate to have a wonderful work team there to support me and each other in times of need.<span> </span>I’m blessed to live in Kiowa and be surrounded by the most wonderful people anywhere.<span> </span>And God new just what he was doing when he put me in the arms of my family and our kids in our arms.<span> </span>A family that truly loves me unconditionally and supports me no matter what.<span> </span><br />
<br />
Now if you ask me what I LOVE to do I’d say It’s these things that mean the most to me and if I only had a day to live I’d live it with them. I’d read to my kids, cuddle them, and tell them what wonderful little people they are.<span> </span>I’d write letters to each and every family member, and if you know my family that would take a long time as there are so many of us.<span> </span>I’d invite everyone to Mom’s and Dad’s for a day of fun, swimming, food, and Karaoke.<span> </span>(July 4<sup>th</sup> is just around the corner so be sure to join us then) These are really the important things in life and don’t really cost a lot but time.<span> </span>You know, we really are all dying.<span> </span>Once born we are moving toward the eternal end; to be with our Father in Heaven forever.<span> </span><b style="color: purple;">So Live the Life you LOVE and LOVE the life you LIVE</b><span style="color: purple;">. </span>It’s up to you and you only to be happy, healthy, wealthy, and wise.<span> </span>I know some days are harder than others to do this, so support each other in this quest.<span> </span>Together we can do it.<span> <span style="background-color: black; color: #f1c232;"> </span></span><b style="background-color: black; color: #f1c232;">Live like you are Living </b>and don’t let a day pass that you don’t do something you LOVE.<br />
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Thank you God for my healing and for my friends, family, community, and your son.<span> </span>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-49316646301782593862011-05-31T16:05:00.001-07:002011-05-31T16:05:50.614-07:00Over Half Way There<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">Memorial Day: a day for thought and reflection on those that have gone before us.<span> </span>Those brave heroes that fought for us and gave the ultimate sacrifice: their lives.<span> </span>Yesterday was a blessed day indeed.<span> </span>We went to Grandma’s house and had a family dinner.<span> </span>With our family, it’s always loud and crazy; but you can feel the love and I’m so happy that God put me where he did and chose this family for me.<span> </span>I couldn’t ask for more love then I receive from all of them. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Melissa, my first cousin, had a great idea.<span> </span>She wanted everyone to write down memories of those in our family that have already passed on.<span> </span>She put them on a poster board for everyone to read.<span> </span>It was very interesting to read the memories and learn a little more about our family history.<span> </span>She also decided to get out the old photo boxes, so we went through some of them, and learned more about our large, loving, family. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Last week was a good week overall.<span> </span>The dizziness and vertigo were much better and really the main issue was fatigue.<span> </span>But nothing I couldn’t handle.<span> </span>I was saying this to Mom yesterday and she said, “Do you think the acupuncture made it better?” I had completely forgotten that I did get acupuncture last Monday after treatment, so maybe it was?<span> </span>I decided to try it, and if it works, yeah.<span> </span>I had my 9<sup>th</sup> chemo treatment today and then also went in for acupuncture again.<span> </span>We’ll see how my week turns out but I’m hoping and planning for the best.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m now <b>over</b> <b>half</b> way done with my chemo regiments.<span> </span>I have 12 the first round and 4 the second round for a total of 16.<span> </span>So I’m on the downhill slide!!<span> </span>I’m praying round two isn’t too hard on me, but I know God will protect and heal me so I must have faith.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also saw Dr. Truong a few weeks ago and he said he believed the tumor has shrank another .5 cm.<span> </span>So it’s around 3 cm now.<span> </span>He also said he fully believes the second round of chemo will completely dissipate the tumor.<span> </span>He’s very optimistic so that helps me to be as well. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m still so thankful for my ‘food angels’.<span> </span>Those meals really help me maintain my energy levels, current weight, and ensure we all get a healthy dinner.<span> </span>We have some fantastic cooks in our community and I just hope that I can repay the favor someday. Lotsahelpinghands is a great site and I’m so glad Krista found it. I find it hard to ask for help, but I know that pride is sinful so I’m trying to get better at it.<span> </span>It’s a humbling experience to admit I can’t do it all; really I probably never could but you know us type A people, we think we can so we try until we can’t try an longer.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">This diagnosis has made me stop and think about the important things in life.<span> </span>Is a little dust really that bad?? I say NO as long as the baby isn’t eating it.<span> </span><span style="font-family: Wingdings;"><span>J</span></span><span> </span>Are toys all over the house going to kill me? NO as long as they aren’t in the path so we can’t trip over them.<span> </span>Life is short, no matter if you have cancer or not.<span> </span>All we can do is cherish the NOW.<span> </span>We are not guaranteed one more second, so I’ve really tried to learn not to sweat the small stuff. As in the big picture will it matter? </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">There was a girl in chemo today that was very upset.<span> </span>She was having a low day and just began crying uncontrollably.<span> </span>She was talking the nurse and I truly felt for her.<span> </span>She said she just is so scared to die.<span> </span>She sometimes wonders why she even does treatments and she’s so angry at the cancer.<span> </span>The nurse assured her all her feelings were natural and part of the grief cycle.<span> </span>I told her the way I make it through is one day at a time.<span> </span>I do have breakdowns and those emotions are normal so break down, get back up, and think positively towards our futures.<span> </span>I told her I do treatments so that I know that I did everything in my power to win this battle but in the end it’s up to God not me.<span> </span>I take it one day at a time and sometimes one minute at a time as I know with treatments we can feel great one minute and awful the next.<span> </span>I told her that’s what gets me through and then I asked her if she was a Christian and had a church family.<span> </span>She hesitated and then said YES, but I’m not certain she does.<span> </span>So please pray for her.<span> </span>I don’t know her name but pray she finds peace and gives her fear and burdens to God.<span> </span>Of course I don’t want to die, but when I do, as eventually we all will, I know I’ll be in heaven with my maker.<span> </span>I read the book, Heaven is for Real last week and it was great.<span> </span>It got me thinking more about what heaven is actually like; as before I’ve only had an abstract concept of it.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m also trying to meditate.<span> </span>Just a minute to start with then I’ve tried to increase it.<span> </span>Being quiet and thinking of nothing to be one with my being is a very difficult task for me.<span> </span>However research shows the mind body connection is critical to survival. It also shows spirituality is key as well.<span> </span>That is why I had to share how I cope with this crazy disease to the girl in chemo. Thank you God for my healing and I’m looking forward to another great week. <span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-85506144393740771102011-05-17T19:29:00.001-07:002011-05-17T19:29:42.815-07:00Genetics<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">Well it is official; I’m on the downhill slide for chemo round one.<span> </span>I had my 7th treatment yesterday.<span> </span>It has also happened: I was forced to wear my wig today.<span> </span>I’m not bald, but thinning and almost balding on the top.<span> </span>So I thought it was time to get it out and wear it in public.<span> </span>Thus far the reactions have been positive, but really what can people say? I mean they have to be nice to a cancer patient right??? </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Arrington says I look like a rock star and Delaney was scared of me this morning and just kept looking at me and then away.<span> </span>She even had Gavin hold her, and that is rare, so she wasn’t sure what mommy had done to herself.<span> </span>It was cute though. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Last week did get me down some and I can tell the treatments are slowly wearing on me but I’m still grateful I have more good than bad days.<span> </span>I’ve been very dizzy after treatment 6 and 7.<span> </span>Then on Friday I was planning to go to the track meet and woke up feeling horrible: nauseous, dizzy, migraine, and achy.<span> </span>I thought surely if I shower and get ready I’d be OK, but I wasn’t.<span> </span>So I had to miss my first event due to the effects of treatments.<span> </span>Needless to say I was disappointed but Gavin took it OK.<span> </span>He had people there watching him though.<span> </span>Mom took the girls, since I was out of commission until about 2 PM.<span> </span>He had fun and that is what matters but I was upset because cancer got me down. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also forgot to mention Jon got his BRCA results a few weeks ago and he was negative.<span> </span>Lucky goose.<span> </span>We are grateful that both of the boys are negative and don’t have to worry about passing the gene on.<span> </span>We’re eradicating this in our family!!<span> </span>We did get some not so great news regarding Dad though.<span> </span>We’ve known he had cysts on his kidneys since December. They were growing and hurting so he got into a kidney specialist. He was diagnosed with <a href="http://www.mayoclinic.com/health/polycystic-kidney-disease/DS00245">Polycystic Kidney Disease</a>. Its progressive and 75% of people end up needing a transplant by age 70. Ugh.<span> </span>We hope he won’t be in that percentage.<span> </span>He’s had to make diet modifications and will be kept a close eye on by his doctors.<span> </span>This is also a genetic disease.<span> </span>Jon called mom and said so do we need to be tested for this too? Since there’s not much we can do to prevent it, it’s up to us if we get tested.<span> </span>Right now I’m not planning too, as I don’t need another genetic condition on top of BRCA, but do plan to speak with my geneticist at MD Anderson to get her take on it. So please also keep dad in your prayers as he needs them too.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Overall all life is good.<span> </span>I’m thankful every day that I have so much support and care all around me.<span> </span>From work, to church, to the community at large I’m very blessed.<span> </span>My life is overflowing with love and sustenance.<span> </span>I can’t imagine not having a support network during such a trying time and I thank God every day for all of you.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also thank God for my continued healing.<span> </span>It was so funny, Fiona, my niece had an oochie on her toe.<span> </span>She didn’t want to swim until it healed and was lying on the floor at moms.<span> </span>I heard her say something like “Thank you for healing me body I knew you could do it” out of the mouth of babes so precious, innocent, and believing.<span> </span>That is what I have to be and know I can learn from her.<span> </span><span> </span>So please continue to pray for me.<span> </span>I know it is working.<span> </span>And thank you god, and my body, for my healing.<span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-18311685986046746692011-05-09T19:16:00.001-07:002011-05-09T19:16:53.228-07:00Half way Done with Round one<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">Mother’s day was a great day.<span> </span>Grandma, Mom, and I went to Wichita Friday and spent the weekend.<span> </span>It was fantastic to get away and spend some girl time.<span> </span>We ate out and went shopping.<span> </span>When we got back on Sunday afternoon Stephen had the kids dressed in the shirts I bought them but they’ve never worn before.<span> </span>Delaney’s says “Find a cure before I grow boobies”. Gavin’s says “Real enough to support my mom Man enough to wear pink doing it.”<span> </span>Arrington’s says, “This chick wears pink for her mom.” They were really cute and happy to see us. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Our kids are some of the best blessings God had ever given me.<span> </span>I’m so lucky to have three beautiful children. Children are a true gift from God. One that helps me stop and smell the roses and one that helps me see the little things in life. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Last week was overall pretty good. <span> </span>Since Stephen was at a conference, we stayed with mom and dad for a few days.<span> </span>On his way home, Stephen had to go to the ER in Wichita because he got a piece of steak lodged in his throat.<span> </span>Evidently he had a narrow esophagus.<span> </span>They went in during an outpatient procedure.<span> </span>Removed the steak and stretched his esophagus. It was a very odd thing, but luckily he’s alright and hopefully the issue is solved.<span> </span>His colleague Eric Ryker was at the ER with him and took him to a hotel for the night.<span> </span>I’m so glad Erik was able to do that, was with the three kids, and being exhausted, it was too much for me.<span> </span>Erik was yet another blessing God sent for us.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I had a reaction after chemo and my port got a rash, however it went away in a few days.<span> </span>Although uncomfortable it was bearable.<span> </span>Then on Thursday, I actually had to leave work for a few hours.<span> </span>All of the sudden, I got shaky, my heart began to beat erratically, and my legs were like jello. It was very odd, as it came on suddenly and without warning. <span> </span>I guess these things happen with chemo? I also started losing considerable amounts of hair Tuesday after last week’s treatment.<span> </span>Arrington told me “mom, I bet you have bald spots with all the hair that you have falling out.’<span> </span>But thus far, I don’t have any bald spots just very thin hair.<span> </span>I’m prepared for it to fall out; and would actually prefer it to, as I’m getting tired of waiting and wondering when it will happen.<span> </span>You see, God is helping me learn patience.<span> </span>One of the many things he’s teaching me through this journey. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Today I had my 6<sup>th</sup> treatment.<span> </span>That means I’m half way done with my first round of chemo.<span> </span>Yeah! Celebrate!<span> </span><span> </span>The treatment went well.<span> </span>I am however wiped out and very dizzy.<span> </span>Odd, as I’ve not had the dizziness issue before but I guess as I progress, different affects will occur.<span> </span>I’m still thankful however that I’ve had very few other side effects. <span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Overall, thing are going well.<span> </span>I pray for this to continue.<span> </span>I’m also very grateful for all the support and prayers that I’ve received. Thank you God for my healing. </div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-80199616843713414442011-04-30T16:40:00.000-07:002011-04-30T16:40:06.168-07:00Reflections<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">As I sit here and reflect back over the past year I can certainly say there is a fork in my road.<span> </span>However I know I must not let it be a roadblock but I must instead look at it as the scenic view.<span> </span>The path less taken.<span> </span>I truly believe God has a plan for the trials and tribulations we encounter.<span> </span>As Pastor Keith spoke about it brings us back to God and makes us rely on faith whereby strengthening us. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Yesterday was an exciting day.<span> </span>I turned 33.<span> </span>It was the start to a new year, new adventures, and to seeing the world as one huge miracle. Things look different then they did a year ago for me, however I never cease to see the possibility that lies ahead.<span> </span>What will I do to make the world a better place as a result of my experiences; I’m still uncertain but I do know that I’ve been given this journey and with that knowledge I must make a difference in the world.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">With this thought in mind, as I was watching the news coverage of the royal wedding I wondered: was Kate like so many other little girls that wanted to be a princess.<span> </span>Did she dress in princess garb like Arrington does or was she less fascinated with the royals?<span> </span>Did her mommy think someday her little Kate would be a real princess?<span> </span>It’s often funny what kids dream up and what parents imagine their children to become.<span> </span>Arrington was shocked that there were actually princesses.<span> </span>She could not believe that Prince William existed and Kate was now a princess.<span> </span>She said she’s like Belle or Tiana.<span> </span>You know me; this conversation gave me a good chance to talk about political structures too; although I’m pretty certain she had no idea what I was saying. Arrington thought princesses were only pretend; something in a fairytale that one sees on TV. For now, I think I will let her continue to believe that as isn’t childhood a miraculous thing? </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I can honestly say however that I’ve never thought of my girls as actually becoming royal princesses in real life.<span> </span>Possibly a doctor or a lawyer; but a Princess?? Maybe it’s because in the US we don’t have a monarchy, but you know what, that actual position in life really isn’t one I’d truly want for my girls.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">What do I want for my children? I wish them happiness of course, but also freedom.<span> </span>Freedom to make mistakes; and not to have the entire country watching and commenting on them.<span> </span>Freedom to be who they want to be; and dress in what they choose to wear. Do you think Kate will have that kind of freedom again?<span> </span>To me this Freedom is a miracle. A blessing that we so often take for granted.<span> </span>Of course being a princess would have its perks but at what price? </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I guess such is life.<span> </span>To every choice we make there is a price.<span> </span>Maybe small or maybe large but a result occurs and often many others linking back to that one choice.<span> </span>In our house we talk about choices.<span> </span>We talk about making good choices and when we make bad choices there are consequences.<span> </span>We want to teach our kids how to make logical sound choices and that choices matter.<span> </span>Even the ones you make when no one else is watching.<span> </span>Aren’t these choices the one<b>s</b> that often reflect our true character?<span> </span>Those choices that we choose just because we know it’s the right thing to do!</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">This year, my life has changed and I too want to change the way I look at life.<span> </span>I’m going to take time to smell the roses, enjoy the simple pleasures, and treasure family and friends.<span> </span>Sometimes I know I get too wrapped up in the daily struggles of life but this year is going to be the start of a fresh outlook and the goal of keeping a positive view.<span> </span>Since my diagnosis I’ve certainly started counting my blessings as much as I do my tribulations.<span> </span>I often think, I’m so lucky and life could be so much worse.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Brenda and I went to training on Thursday and we had lunch with a few girls that attended the seminar too.<span> </span>As we were talking, one shared with us that her husband was being deployed for at least a year to Kuwait.<span> </span>I thought to myself, I’m so glad Stephen isn’t in the military anymore or that could be me.<span> </span>This brought me back to the realization that everyone has trials and tribulations. That’s why we must remember to be <u>kind</u> to everyone we meet as they are all fighting their own battles.<span> </span>It’s how we decide to react to those battles and if we choose to have faith that makes all the difference in the world.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I encourage you all to Go out and count your blessings, keep an open eye for all the miracles that are bestowed upon us, and most importantly have faith that God will see you through. <span> </span>Thank you God for my healing and for another Miraculous Birthday. </div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-63044812426903769982011-04-21T20:36:00.001-07:002011-04-21T20:36:23.299-07:00It's a Joyful Day<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">I wanted to share some great news.<span> </span>I went to the oncologist today and he thinks the tumor went down by 1/8th.<span> </span>It was 4x4 cm and now it’s 3.5x3.5cm.<span> </span>This is great news.<span> </span>Also, since it’s not hurting like it was previously that is a wonderfully positive sign too.<span> </span>I am so blessed by this and not to have had many side effects.<span> </span>I haven’t been sleeping well for the past few weeks, so he also gave me a sleeping aid.<span> </span>I plan on trying that and seeing how it goes.<span> </span>However I am so grateful for the success of the treatments and the very mild side effects that I’ve experienced thus far. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I am looking forward to this weekend.<span> </span>Although it will be very busy, it’s going to be a blast.<span> </span>Sunday will be a special day with nearly 60 family and friends at grandma and grandpa’s house then egg hunting for the kiddos.<span> </span>Life is good, God is Good, and Thank you God for my healing.<span> </span>Prayers are being answered every day.<span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-73395910500981182022011-04-13T19:47:00.000-07:002011-04-13T19:47:42.835-07:00Pain in the Neck<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal"><b>Short Version:</b> Second Chemo treatment went well.<span> </span>They sped it up from 4 hours to 2.5.<span> </span>Yesterday my neck began to hurt so bad I could not hold up my head.<span> </span>It was on my left side where the port is located, so I think they must be connected in some way.<span> </span>Same thing started happening around noon today.<span> </span>Called surgeon that put in my port and she thinks it might be a kinked nerve. <span> </span>Asked if I could see chiropractor and they surprisingly said yes.<span> </span>Have chiropractor appointment tomorrow; hope it helps with this neck issue. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Chemo was interesting this week.<span> </span>To start off with they were running late.<span> </span>Like an hour and a half late. Wow, that wasn’t fun waiting an hour and a half to get infused with chemical agents.<span> </span>Yuck.<span> </span>So once they got me started I realized that the other two patients that were there that day taking treatments were terminally ill.<span> </span>They were basically extending their lives by doing chemo but still had very short life span estimates.<span> </span>Although they were both obviously Christians, and said that they were at peace with the fact they’d be with the maker sooner then they planned, it was still very hard to hear.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I completely understand this, as I am not afraid to die, because I know I am going to be in heaven; however what makes me sad are those I leave and the thought of my kids not growing up with a mom.<span> </span>I very rarely even allow this thought into my mind but spending several ours with the other patients made me think about it for a short time.<span> </span>This was very sad to me, as both were also recurrent cancer patients.<span> </span>I pray and pray that I will go into remission and stay that way, but on days when I’m faced with the harsh reality of re-occurrence, I do somewhat get panicked.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">When I finally got done with this week’s treatment I was more than ready to get out of there and focus on the <u>positives</u>.<span> </span>The here and now and the fact that I believe in <b>miracles</b> and know God is going to take care of me, get me through this, and make me into a better person because of it. Thank you God for my healing.<span> </span>Thank you God for my healing.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">It appears each treatment might make me feel differently, at least at first, though.<span> </span>This treatment has made it difficult for me to sleep.<span> </span>Last treatment I was exhausted, this treatment my mind won’t stop and let me sleep.<span> </span>I’m told it’s due to the steroids, which I can believe as my feet and hands are also swollen. My body is so tired yet my mind keeps going.<span> </span>The weird part is that I’m not worried or thinking about anything in particular but instead weird, off the wall random thoughts that keep racing through my mind. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Unfortunately yesterday I had a very weird thing happen: my head felt too heavy for my neck to hold up.<span> </span>My left side of my neck was in extreme pain.<span> </span>I think it has something to do with the fact that they sped up my chemo and during the infusion I could feel a cold numbness in my chest around port catheter connected to my vein. It felt weird when infusing; but since they were speeding up the treatment, to the ‘standard time’ as opposed to the four hours they have me scheduled for, I figured that was normal. So I went home last night and had to lie down.<span> </span>I also had to take some pain and anti-nauseous meds but after they had time to set in, the pain lessened.<span> </span>However I still did not sleep well, I woke up every 30 minutes to an hour, but I’m assuming this is due to the steroids.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Then around noon today my neck started doing the same thing.<span> </span>Before it got to the point it did yesterday, I went home to rest and take some pain meds.<span> </span>I also called my surgeon, Dr. Nicholas to see if any other patients had this issue. She called me back and this is an unusual occurrence.<span> </span>I told her I do see a chiropractor and asked if she thought I could see him?<span> </span>She did think it would be Ok and said it could be a kinked nerve especially if I regularly saw a chiropractor; he might be just what I needed to solve this odd occurrence.<span> </span>I have an appointment tomorrow with Dr. Coulter in Alva.<span> </span>Since Dr. Keeney stopped coming to Alva, I’ve been seeing Dr. Coulter.<span> </span>I will be interested to see if he’s comfortable manipulating me with a port-a-cath but I’m hopeful he can and get this pain out of my neck.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Overall all, this week has been more stressful then last, but could certainly be worse so I’m grateful these are the only issues I’m experiencing. We started my daily injections again today and will do this W-F. From the lab results last week, these shots are working very well.<span> </span>My white blood cell count was higher than it has ever been so this is very positive.<span> </span>I’m very happy Dr. Truong had the foresight to start me on these before my count dropped too low.<span> </span>He’s been very cautious with me and I’m so appreciative that Patty referred me to him five years ago.<span> </span>I’m so lucky to have him managing my care.<span> </span>While waiting for chemo there was a couple from Meade KS that had to come to Pratt for treatments.<span> </span>I think they said it was a 2 hour trip one way?! I started thinking about that and how lucky I am to have Pratt within 45 minutes as opposed to having to drive to Wichita.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span> </span>I also started thinking about how fortunate I have been to have Patty taking care of me for so many years. <span> </span>She got me to Dr. Truong when she realized my white blood cell count was low five years ago and I was diagnosed with cyclic neutropenia.<span> </span>At that time I did not need an oncologist, but instead a hematologist, and Dr. Truong is both.<span> </span>He’s been working with me since then so I have built a trusting relationship with him that has been extremely beneficial for this diagnosis.<span> </span><span> </span>Patty also took me seriously when I came in with a lump in my breast.<span> </span>She referred me to get the diagnosis and then also referred me when I asked her to so I could go to MD Anderson.<span> </span>She, and the other team members at the Kiowa Clinic, have been fantastic. We are truly lucky to have such a caring and personally connected medical team within our community.<span> </span>I know for a fact if I were still in Colorado Springs, my primary care doctor would not have taken near the interest or given me the care that Patty and the girls in Kiowa have.<span> </span>Thank you all so much.<span> </span>It’s good to know there is a team that cares in your corner.<span> </span>So far, I’ve been extremely lucky to have such a great team working to help me.<span> </span>All except for my first experience with the initial mammo and ultrasound in Wichita, I’ve been extremely happy with my care.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also know that I’m extremely blessed to live in such a wonderful community.<span> </span>Over the past few days friends have brought us dinner on M and W nights.<span> </span>I cannot express how grateful we are for these angels nor did I realize what a stress it would take off of us by having someone do this.<span> </span>It really has lifted a burden that we didn’t realize we could use help with.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I appreciate everyone for helping me and my family as we go through this time in our life; words cannot express my gratitude. <span> </span>I know your prayers are working and can feel the love and positive thoughts that you are all sending my way.<span> </span>Thank you God for my healing. <span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-28465585416354039902011-04-10T21:03:00.001-07:002011-04-10T21:03:20.373-07:00One Week Down<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal"><span style="font-family: "Arial","sans-serif";">Well, I made it through the first full week of Chemo and tomorrow will be the second treatment.<span> </span>Yesterday was full of soccer, soccer, and more soccer.<span> </span>It was a great day but very windy and warm.<span> </span>We were all tired when we got home, as the kids had games at 9, 10, and 12.<span> </span>Gavin and Arrington are both doing well and most importantly seem to enjoy playing soccer.<span> </span>The outing really wore me out though, as the wind and sun combined drained me.<span> </span>I was told that chemo might make me more sun sensitive. Since I already don’t tolerate sun well, this is a huge disadvantage for me.<span> </span>I think even without chemo though I would have been tired but by pairing the two made me all the more tired. </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="font-family: "Arial","sans-serif";">We finished the three injections a week to increase my white blood cell count on Friday.<span> </span>They went really well and don’t hurt too much at all.<span> </span>The kids are very interested in seeing Stephen giving me shots, they just can’t believe it that Mommy is getting a shot and not crying.<span> </span>Arrington keeps asking me “mommy did you cry? Or Mommy, are you going to cry?”<span> </span>It’s really cute.<span> </span>She also decided she wants to be a shot giver when she grows up.<span> </span>Not a nurse or phlebotomist but only a shot giver.<span> </span>I’m not sure if that is really a career option but maybe, by the times she’s old enough, medicine will be so specialized it could be.<span> </span></span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span style="font-family: "Arial","sans-serif";">Krista Pollock also set up a really neat webpage which I want to share.<span> </span>We’ve been blessed to have so many people offering help, but at this point I’m just not really sure what we’re going to need.<span> </span>The site Krista set up it hosted on Lotsa Helping Hands.<span> </span>This site was created to answer the question ‘<span class="special-emphasis2"><span style="color: windowtext; font-weight: normal;">what can I do to help’?</span></span></span></div><div class="MsoNormal" style="margin: 12pt 0in 6pt;"><span style="font-family: "Arial","sans-serif";">It basically coordinates activities that we might need.<span> </span><span>Everyone knows what to do and when to do it. And they say in their marketing material Energy is spent helping, not scheduling.<span> </span>It’s a free site so that makes it even more appealing. </span></span></div><div class="MsoNormal" style="margin: 12pt 0in 6pt;"><span style="font-family: "Arial","sans-serif";">Since Krista hasn’t used this before and neither have I, we are learning as we go. From what we understand, people register to be on the site and then Krista or I can post any needs we might have.<span> </span></span><span style="font-family: "Arial","sans-serif";">Members are then notified by email when new needs are posted. The system also <span style="color: #3d3d3d;">sends </span>reminders, which I really like, as I can’t seem to remember anything without my phone reminding me to do it.<span> </span><span style="color: #3d3d3d;"></span></span></div><div class="MsoNormal" style="margin: 12pt 0in 6pt;"><span style="color: #3d3d3d; font-family: "Arial","sans-serif";">If you are interested in becoming part of the community you just go to this webpage </span><a href="https://www.lotsahelpinghands.com/c/639924/"><span lang="EN" style="font-family: "Arial","sans-serif";">https://www.lotsahelpinghands.com/c/639924/</span></a><span lang="EN" style="font-family: "Arial","sans-serif";">, put in your email, and request to be added.<span> </span>Then Krista can add you and you can see any request that we make.<span> </span>It sounds very simple, and extremely helpful, so it will be interesting to see if it turns out that way. </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span lang="EN" style="font-family: "Arial","sans-serif";">I think this site will be useful, not only for our situation, but if it works as they say it does, for other volunteer activities that our community might have.<span> </span>Right now the only things I could think of are meals since I’m so worn out the first few days after chemo.<span> </span>I told Krista I certainly did not want to be a burden, as people are already so busy, I hate to make them any busier.<span> </span>So she thought this would be a simple way to give those of you that want to help the opportunity to help.<span> </span></span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span lang="EN" style="font-family: "Arial","sans-serif";">As I’ve said many times, I can feel your prayers.<span> </span>God is working and I feel him with me always.<span> </span>Since I’ve made it through the first week, I’ve started my check off and we have only got 11 more rounds of this first chemo regiment before we go back to MD Anderson on June 27.<span> </span>I appreciate all the well wishes, cards of support, and most importantly prayer.<span> </span>Thank you God for my healing. </span><span style="font-family: "Arial","sans-serif";"></span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-88562663099901624142011-04-07T19:26:00.000-07:002011-04-07T19:26:44.879-07:00He's not heavy he's my brother<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">Today was a very good day.<span> </span>We found out that Berton is <b><span style="font-size: 20pt;">NOT</span></b> BRCA positive which means that Fiona <b><span style="font-size: 18pt;">cannot</span></b> have this gene either.<span> </span>She will be spared the highly increased probability of having breast or ovarian cancer now.<span> </span>This is fantastic news for our family.<span> </span><span> </span><span></span>Luckily God had me adopt so I don’t have to worry about passing the gene on to our kids.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m doing very well after chemo.<span> </span>I did not take an anti-nauseous medication today and had much more energy and was able to think better and have clarity of thought.<span> </span>Tuesday and Wednesday are somewhat of a blur, almost as if I was in a haze.<span> </span>I’m told this is called chemobrain, but I suspect it had more do to with the medication to ensure I didn’t have side effects from chemo then the chemo itself. But hey, I'd much rather be fatigued then sick. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also got an email from mom today for the relay of life.<span> </span>A local group of wonderful women known as the <i>Pistol Packin’ Mamas</i> have a mission of ‘shooting down cancer’.<span> </span>They want to help rid the world of cancer and help people have more birthdays.<span> </span>Every year they do numerous things such as concession stands, serve at plays, and of course the relay for life to raise money for this cause. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">In case there are any of you following my blog and would like to learn more about the relay for life or the American cancer society please visit mom’s page at:<span> </span><b><u><span style="color: blue; font-size: 7.5pt;"><a href="http://main.acsevents.org/site/TR/RelayForLife/RFLFY11National?px=10283759&pg=personal&fr_id=31990">http://main.acsevents.org/site/TR/RelayForLife/RFLFY11National?px=10283759&pg=personal&fr_id=31990</a></span></u></b><b><span style="font-size: 7.5pt;"></span></b></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">It’s really hitting home this year as mom has been involved with this group for a few years.<span> </span>Now however she’s also my chemo buddy and is helping me personally battle this cancer and win the fight for my life. As you can see, God is always at work in our life.<span> </span>He is good all the time and all the time God is good.<span> </span>Thank you God for my healing. </div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-59103455900715032382011-04-05T19:34:00.000-07:002011-04-05T19:34:17.265-07:00Day 1<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal"></div><div class="MsoNormal"><b>Short version</b>: had chemo yesterday.<span> </span>It went well.<span> </span>I was very tired last night.<span> </span>The only side effect I had today so far was fatigue.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Spent a lot of Sunday night dreaming about how the first day of chemo would go.<span> </span>The unknown is scary so I was very ready to get the first treatment under my belt and be able to actually know and feel what would occur.<span> </span>We went to Pratt Monday to begin chemo.<span> </span>Mom took me and Delaney also came along. Evidently, in the cancer world they call the first day of chemo Day 1.<span> </span>The people in Pratt are very nice and the chemo treatment room is interesting.<span> </span>There are 5 chemo recliners in one small room. So you certainly get to know the other patients, which are doing chemo, very well. We checked in about 9:30 and were done by 1:30.<span> </span>They thought it would take 5 hours, but it went faster than expected. I was worried about how the chemo would feel but it wasn’t too bad.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I asked them if they would numb my port, as it’s under my skin so have to insert the needle into the port through my skin; and they said they don’t.<span> </span>That worried me, but the nurse assured me it didn’t hurt ‘too much’.<span> </span>I was nervous but when they stuck me it really was pretty painless.<span> </span>They then gave me Benadryl, in case I had a reaction and anti-nauseous medication before the actual chemo.<span> </span>Those made me shaky and very tired.<span> </span>Almost as if I was in a daze. I was trying to email on my phone but had to put it down as I couldn’t see straight and could barely hold it. Luckily that only lasted for about 45 minutes then I was OK again but still very groggy. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">The nurse started the chemo after the pre medications and ran it slower at first to ensure no allergic reaction.<span> </span>Of course my chest got red blotches, which it does if I get nervous, mad, hot, or even eat food I’m not used too; however, they thought I was having a reaction.<span> </span>So I had to have another nurse look at me too.<span> </span>As they were both studying my ‘suspicious breakout’ and getting ready to call the doctor, even though I told them I did this all the time, another patient, Jean was her name I think, <span> </span>spoke up and said “I’d be turning red too if you were both looking at me like that.”<span> </span>They laughed at her, but ended up agreeing to let me keep going; sure enough, my blotches went away after a little while. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Treatment went well; the only side effect that I’ve had thus far is that I was exhausted on Monday night.<span> </span>I solved that by going to bed early so that was a pretty easy fix.<span> </span>I was also tired today, but took a caffeine pill right after lunch and that really picked me up.<span> </span>I’ve been checking my tumor and as of now, it has not seemed to shrink, YET.<span> </span>I know, it will take more time, but I’m optimistic that it will begin to shrink soon. I’ve been told that other women with this type and grade of cancer have had their tumors dissolve with chemo and I plan to be in that group soon. <span> </span>Of course I’d still have to have the mastectomy and hysterectomy but we’d know the chemo worked well if the tumor shrank. The nurses also sent me home with medication to help increase white blood cell production. I will have to have these injections three days a week: Wednesday-Friday.<span> </span>As of now, Stephen is the person that will administer these to me and I will give everyone and update on how that goes within the next few days.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Another exciting thing that happened on Monday was that little Delaney actually got her first tooth.<span> </span>Yeah, finally, we are all so happy.<span> </span>So we both had very memorable and life changing events take place on Monday April 4, 2011.<span> </span>Her little tooth is so cute.<span> </span>Grandma Barb gave her a cracker, which she could actually bit with that one tooth as opposed to gumming until it was soggy.<span> </span>So God has been good to us and Thank you God for my continued healing. </div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-16912940962502747482011-04-02T21:54:00.001-07:002011-04-02T21:54:45.534-07:00Getting Ready<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal"><b>Short Version: </b>Got my port in Thursday.<span> </span>Surgery went well.<span> </span>Saw Dr. Troung on Friday and he cleared me to begin chemo in Pratt on Monday at 10 AM.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">We just got home from the Borderline Theater production of <a href="http://www.kiowanews.com/Leading_Ladies.html">Leading Ladies</a>. It was very entertaining.<span> </span>I told Uncle Mick that he had so much experience with wigs now he’d be my go to for advice in the next few weeks when I start wearing mine.<span> </span>It was also nice to get to see so many special people from our community.<span> </span>Many wonderful supporters have reached out to me and for that I’m grateful.<span> </span>I am so lucky to be part of such a caring community and to have so many people praying for me and my family.<span> </span>I can indeed tell you that I feel your prayers and they are certainly working.<span> </span>Keep the positive energy and heartfelt prayers coming as together we can beat this thing.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">On the medical side, Dr. Nicholas put in my chemo port on Thursday afternoon.<span> </span>I had to fast all day and decided I certainly prefer having surgery first thing in the morning as opposed to late in the afternoon. <span> </span>One advantage of not having to be there until 2 pm though was that I also got to go into the office all Thursday morning; that was nice to at least get my desk cleaned off my desk.<span> </span>Although I’ve been able to work some from Houston, it’s just not the same as being in office and getting back into a routine.<span> </span>I’ve decided, for as long as I’m able, we’re going to keep our routine as normal as possible.<span> </span>I really hope Chemo treats me well and I don’t have too many side effects so I can continue a somewhat ‘normal’ life.<span> </span>I’ve spoken with many survivors and many really didn’t have extreme side effects so I’m hopeful I too can be part of that club. Of course, I expect to lose my hair, but if I can get by without being too nauseous or fatigued I will be extremely pleased.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m just ready to get treatments started so I can get them completed.<span> </span>I’m pretty sore from the port insertion; it feels like my skin is stretching and raw.<span> </span>Sleeping has become an issue as I’m a side sleeper.<span> </span>I wasn’t able to sleep on my right side due to the tumor and now the left side is a problem due to the port.<span> </span>I’m going to try and learn to be a back sleeper though as when I have the mastectomy I’m sure that will be my only option then too.<span> </span>It’s actually sort of amusing, as I wasn’t sleeping well before the cancer because we had Delaney and she just started sleeping through the night a few months before the holidays.<span> </span>I guess once again God was preparing me for this as I’m used to being sleep deprived and somewhat fatigued.<span> </span>I’m sure any parent to a baby can relate too this. <span style="font-family: Wingdings;"><span></span></span> </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I met with Dr. Troung on Friday and he cleared me to begin Chemo.<span> </span>My blood draw looked good and everything is set to begin treatment.<span> </span>He said he really likes Dr. Green.<span> </span>I’m very impressed how all my physicians have worked so well together.<span> </span>I know coordination can be difficult, but thus far, each doctor and their staff have gone above and beyond to ensure that they keep my ‘team’ in the loop. One thing Dr. Troung asked was did I have my wig? I said yes I did so I was all set. My wig is similar to my current hair but has more highlights.<span> </span>I’m glad we got it but I’m sure it will take me a while to get used to it. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’m scheduled to begin chemo on Monday at 10 am in Pratt.<span> </span>I’m told insurance has approved me to self-inject the medication needed to keep my white blood cell count up, so this will save me three extra trips to Pratt every week. My spirits are good and I’m so happy to be home.<span> </span>Thank you God for my Healing. </div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-2743597783357245432011-03-31T20:52:00.001-07:002011-03-31T20:52:59.439-07:00Getting Started<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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</div><div class="MsoNormal"><b>Short Version:</b> Getting chemo port today.<span> </span>Visit Dr. Troung tomorrow to get cleared for chemo, which will begin Monday at 10:00 in Pratt.<span> </span>I will also be getting injections Wed.-Fri. of a medication to increase my white blood cell count when doing chemo. Radiation is still up in the air and will depend on many factors that will be determined as we go.<span> </span>Double Mastectomy and hysterectomy will probably take place in early November. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I am on my way to Wichita to get my chemo port installed by Dr. Nicholas and wanted to give a quick update. We got back from Houston yesterday.<span> </span>We left MDA after my radiology oncologist appointment Tuesday and stayed at Stephen’s parents in Athens, TX.<span> </span>It was nice to get to see them and also broke up the trip some for Delaney. Tomorrow I will see Dr. Troung so he can clear me for Chemo.<span> </span>I am scheduled to begin chemo on Monday at 10 am in Pratt.<span> </span>Evidently it will take 4 hours or more to administer the treatments.<span> </span>I was surprised by the length of time it takes so it looks like my Mondays are shot for the next 12 weeks.<span> </span>They do have Wi-Fi, so I can take my laptop in.<span> </span>For that I’m grateful!<span> </span>At least maybe I can get some work done while receiving treatments.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also got my PET Scan back and it looks clear except for the tumor that we know of in the right breast.<span> </span>This is a very wonderful outcome!!<span> </span>God has been at work!<span> </span>I also find it odd that I have such an aggressive cancer, however it hasn’t really grown since I first found it before New Year’s?<span> </span>This has to be God working.<span> </span>He made the tumor grow quickly and large enough for me to find, which I did.<span> </span>He also made it hurt bad enough that I had to go back into the doctor even after the first radiologist told me I was fine.<span> </span>Now I truly feel he’s working again as he is holding the tumor to its original size.<span> </span>It just amazes me what when I look for miracles I find they are all around. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also visited the radiology oncologist on Tuesday.<span> </span>Right now radiation is still up in the air.<span> </span>If the tumor shrinks with chemo and no cancer is found in my lymph nodes during surgery then NO Radiation.<span> </span>If the tumor remains the same with chemo and no cancer is found in my lymph nodes during surgery then Radiation is in the gray area.<span> </span>Radiation is recommended if the recurrence rate is 15% or more.<span> </span>In this scenario the recurrence rate would be about 18%.<span> </span>I think I’d probably have it, but it would be my choice.<span> </span>If they find in surgery that the lymph nodes are infected with any cancer, radiation is a must.<span> </span>It would be 6 weeks daily for a total of 30 treatments.<span> </span>I guess the radiation only lasts about 15 minutes and the entire treatment is about one hour daily with prep included. <span> </span>MDA has some of <span> </span>the most advanced radiation treatment options so if I have to have radiation I would go to MDA for that and be there for those 6 weeks. I hope I don’t have to have radiation as I don’t want to be gone that long, but if that is what has to happen I will do it. <span> </span>Radiation has the possibility of damaging the lungs and heart and is very operator dependent, just like the surgery.<span> </span>So I want to ensure I’m getting the best operator i.e. doctor and care possible.<span> </span>Just like with the mastectomy and hysterectomy, skill and experience are very critical. <span> </span>Since MDA does this so much the damage likelihood to my lungs and heart are almost nonexistent however with lesser experienced groups the statistics could be different. </div><div class="MsoNormal"><br />
</div><span style="font-family: "Times New Roman","serif"; font-size: 12pt;">I also saw the genetic counselor and she called me yesterday with a very interesting finding.<span> </span>Evidently the BRCA-1 gene I have derives from the Ashkenazi Jewish Founder Ancestry.<span> </span>This would not affect my treatments but is a very interesting insight into my heritage; as we had no idea any of our family was of Jewish decent.<span> </span>By having this particular gene, the likelihood of being BRCA positive goes from 1 in 750 for the general population to 1 in 40 for this ancestry.<span> </span>There are also other possible genetic disorders inherited and I’ve emailed my genetic counselor Michelle Jackson to see if I need testing for other possible inherited disorders.<span> </span>Dad also found out today that he is BRCA-1 positive too with the exact same genetic malformation that I have, which indicates I received the trait from his side of the family.<span> </span>People inherit good and bad genes from parents, but I know he feels bad.<span> </span>However, it’s no one’s fault, it’s just the way God made us.<span> </span>Now we know we have some Jewish ancestry I will have another project to do as I want to find out more about this particular lineage and their customs and cultures! Thank you God for my healing.</span>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com2tag:blogger.com,1999:blog-3553902936236291461.post-41409243443161128392011-03-25T14:17:00.000-07:002011-03-25T14:17:47.779-07:00Chemo First<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal"><b>Short Version: </b>We get to leave after the radiology oncologist appoint and PET scan on Tuesday.<span> </span>So we will be home on Wednesday since the appointments are in the afternoon.<span> </span>I will start Chemo for 6 months in Pratt/Wichita with Dr. Troung. <span> </span>I will then come back to MDA for a double mastectomy and possibly the hysterectomy at that time too.<span> </span>I may get the port for Chemo delivery next Thurs or Friday and Dr. Nicholas will do this.<span> </span>I will then see Dr. Troung early the following week and we are shooting for me to begin Chemo that week too. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Today was another long day as little Miss Delaney decided to wake up at 1:30.<span> </span>I put her into bed with us and she tossed and turned all night.<span> </span>So I got up around 5:25 to get ready for my 8 am appointment with Dr. Wagner.<span> </span>We met with Dr. Wagner’s team and they were fantastic.<span> </span>All agreed that a double mastectomy was the way to go.<span> </span>She also said that she might be able to get the gynecological oncologist to do my hysterectomy during the mastectomy.<span> </span>I was happy about this, as I was told previously that they wouldn’t want to do this. However Dr. Wagner thought it would be fine since the hysterectomy is so minor compared to the mastectomy.<span> </span>I’m glad not to have to wait for yet another step and be under anesthesia again.<span> </span>She is going to try and save my breast skin so the plastic surgeon can use it as I don’t have much skin to graft.<span> </span>She looked over the mammo and there is just barely enough margin to make this happen so she suggested I do chemo first in hopes the tumor will shrink and give her more margin to save my skin and make the process easier on me and the surgeons.<span> </span>Of course the most important thing is to remove the cancer, so if she has to cut skin to ensure this she will. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">We then met with Dr. Green and she concurs that chemo first is the best route.<span> </span>It will also allow us to know if the cancer is responding to the chemo since it will possibly get smaller. She said that we could go home Tuesday after our appointment with the radiology oncologist, Dr. Smith. It’s interesting as Dr. Wagner doesn’t think I will need radiation but Dr. Green thinks I will.<span> </span>So I guess Tuesday will tell.<span> </span>Radiation will be 4-6 weeks and will more than likely take place in Houston, so it’s really a pretty big decision Dr. Smith will make. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I will have weekly low dose chemo for 12 weeks in Pratt with Dr. Troung then I will come back to MDA for imagining and appointments with the gynecological oncologist and reconstructive surgeon. I will then have FAC Chemo every 3 weeks for 4 times.<span> </span>Once Chemo is completed, I will have to wait 4-6 weeks for the mastectomy and hysterectomy which I will do at MDA.<span> </span>Then if I need radiation, I will start that sometime after the surgery; we will know more about that on Tuesday if Dr. Smith deems it necessary.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I think chemo during this time of year and through the summer is a great idea for me as there are less illness and the kids are not in school being exposed to as many viruses.<span> </span>So I’m hoping this will also help me keep healthier so I can finish the chemo on schedule.<span> </span>The low dose will allow the oncologists, Dr. Troung and Dr. Green, to see how my white blood cells react and sort of ease me into the higher dose.<span> </span>Also, doing chemo gives me time to get ‘adjusted’ to the mastectomy.<span> </span>As Stephen says about that, don’t think of it as losing your breast, think of it as leveling an old building and putting up a fantastic new structure in its place.<span> </span>Wow, that’s an interesting analogy, but at least he’s got a positive attitude too.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><span> </span>I also met a fantastic lady in the waiting room who told me she turned over her worries and fear to God and has not had side effects from her Chemo. After I got called back to see Dr. Wagner’s nurse, mom was in the waiting room with Delaney for a little while until we saw Dr. Wagner, and this precious woman told her to tell me also to ‘let it go’<span> </span>This is so true and I have let this all be in the Lord’s hands.<span> </span>He’s my maker and he only has the power to make this a success, not me.<span> </span>I have to give up control. We are coming home next week, yeah. Thank you God for my Healing. <span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com4tag:blogger.com,1999:blog-3553902936236291461.post-88392896808049201352011-03-24T19:58:00.000-07:002011-03-24T19:58:12.528-07:00Long Day<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">I have decided to include a short version first with just the changes/updates for those that only want, or have time for, the facts.<span> </span>For others that have the time and want the chronological just keep reading.<span> </span><span style="font-family: Wingdings;"><span>:)</span></span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"><b>Short Version:</b> Had to have one lymph node biopsied as it was a little suspicious.<span> </span>Preliminary pathology looks good but final results will take 3-5 days.<span> </span>All else is the same. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Today was a very long day.<span> </span>We started at 5 am as Delaney woke up and was stuffy and feverish.<span> </span>So I gave her pain reliever and tried to put her back to sleep.<span> </span>She went to sleep around 5:30 and I just decided to get up and start the day since the alarm was scheduled to go off at 6 am.<span> </span>Stephen stayed with Delaney, since she is still teething, and we didn’t want to try and get her cleared today.<span> </span>Mom and I rode the shuttle and left at 7:30 for a 9 a.m. appointment.<span> </span>Lucky we arrived early as they scheduled my lab for 7:15 but forgot to tell me.<span> </span>So we headed downstairs and got labs drawn.<span> </span>We then went back up for the mammo and ultrasound.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">They took me back early and I got the mammo done.<span> </span>Then I had over an hour and a half of wait time until they called me back for the ultrasound.<span> </span>However, in the meantime I was waiting in a hospital gown but hey I got to keep on my pants.<span> </span>I’m truly learning to love those gowns, and the blue just does great things for my complexion.<span> </span>I was lucky enough to meet a wonderful MDA volunteer.<span> </span>She is a breast cancer survivor; she set and talked with me for a while.<span> </span>We talked about how God loves us and the fact that we have to give our situation up to faith as we don’t have control, only God does.<span> </span>I also asked her about how she deals with the fear of recurrence and she said the same way, through faith.<span> </span>If he got us through this once he will give us strength again.<span> </span>The outcome might not be what we want but it’s what he wants and he is our maker and knows our very sole.<span> </span>She suggested a book called ‘Praying through Cancer” and said it’s available at the resource center.<span> </span>I didn’t make it down there today to get it but I’m going to try and check it out soon. <span> </span>She also said her chemo and radiation wasn’t an issue and didn’t slow her down at all.<span> </span>She said she tells her story as she wants others to know that it’s possible to have very few side effects. She said of course we are all different, however it’s possible.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Evidently after she spoke with me, she ended up talking with mom when she was in the waiting room. They got to talking and Mom said she was from Kansas. The Volunteer, whose name I think was Diane, said I was just talking with a young lady from KS does that happen to be your daughter?<span> </span>Mom said yes and they continued talking for about an hour.<span> </span>I was in my imagining appointments for almost four hours so everyone had plenty of time to make the connections. She also asked mom to remember to tell me to ‘take it one day at a time’.<span> </span>It’s ironic she said this, as my cousin Rebecca sent me a pull tab that I put on my purse and it says the same thing.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">So after the mammo I had the ultrasound.<span> </span>During this it appeared one of the lymph nodes might be a little larger than normal and the radiologist decided <span> </span>to go ahead and biopsy it.<span> </span>Since I’m so young and my cancer is so aggressive she said they are going to be aggressive right back and leave no stone unturned.<span> </span>So I had one lymph node biopsied.<span> </span>It wasn’t really bad at all; it was like giving blood but with a larger needle.<span> </span>The radiologist said the preliminary pathology looked good but the final would be 3-5 days. <span> </span>I’m a little sore tonight but nothing compared to the breast biopsy.<span> </span>The radiologist also said that the reason my cancer was hurting is that there is a blood vessel with nerves around it and the cancer is pushing on it causing the pain.<span> </span>She was very gentle, very compassionate.<span> </span>When I was finally released from the biopsy at noon we ate at the café.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Right after I walked out Stephen calls and he had taken Delaney to the doctor.<span> </span>She evidently has a double ear infection due to teething.<span> </span>The double ear infection is nothing new and the pediatrician had said if she had one more then she needed tubes.<span> </span>So when we get back I will be calling our ENT, Dr. Harris.<span> </span>Yes, it’s crazy our family has an ENT but we do; as both Gavin and Arrington have had surgery by him and so have I.<span> </span>Delaney has been boarder line for several months and since I now have this cancer, I think she and I will both be better if she gets tubes ASAP.<span> </span>They made so much difference with Arrington and I’m sure they will help her too. <span> </span>The doctor also tested her for Strep but that was negative, thank goodness.<span> </span>He gave her an antibiotic for the ear infections and said she should be OK soon; those teeth popping in are just giving her a run for her money and ours.<span> </span>She should be able to be cleared tomorrow as she’s already looking better.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">After lunch Mom and I met with the genetic counselor.<span> </span>It was enlightening and she pedigreed our family.<span> </span>From just looking she said she would guess the BRCA 1 gene came from Dad’s side.<span> </span>Since he was tested on Tuesday, we’ll know if that is correct shortly.<span> </span>We’re hoping to hear by early next week his results.<span> </span>I’m confident Dr. Nicholas will call him immediately once they are in. the good part about <a href="http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA">BRCA 1</a> is that it doesn’t really affect men as much as it does women.<span> </span>It also has less effect on them the BRCA 2.<span> </span>So that is a positive point if my brothers do end up having it. <span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">We also met with a high risk breast specialist.<span> </span>Both she and the geneticist discussed my options and it seems to be unanimous that a double mastectomy is the best bet.<span> </span>It’s important to remember that even with the breast removal that there is still about 5% of breast tissue left and there is the possibility of that tissue getting a recurrence.<span> </span>I think this is why radiation is being considered but won’t know all about that until we see Dr. Smith, the radiology oncologist, next Tuesday. I will also be referred to a gynecological oncologist to monitor my ovaries until they can be removed after the breast cancer treatment. They also suggested that I have my hysterectomy by this specialist as they will ensure they get out all the tissue and are familiar with the procedure for prophylactic treatment. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also found out the PET scan is next Tuesday morning.<span> </span>I asked for a schedule when I checked in today and the front desk staff gave it to me but no one has called me to tell me that yet.<span> </span>We finally got back to the hotel around 4:15.<span> </span>We were actually on the same van as with the couple we left with at 7:30.<span> </span>It was kind of funny since we were on the same schedule. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">We then went and ate dinner and met a woman at the next table and began talking.<span> </span>She gave us her card and said she’d like to know how I was doing and that she would pray for us.<span> </span>She said that she knew it might be odd, but she could feel and see, by a sense she had, that I would be a survivor of this.<span> </span>Mom and I talked about that and it made us feel good.<span> </span>We told her how God was already acting for me and that we knew prayer was working and the more the better.<span> </span>I also talked with her about a lump in her breast they were watching, and suggested that she get it biopsied, as they told me mine was not malignant when they first saw it January too.<span> </span>I don’t mean to be an alarmist, but how can one know it’s not cancer unless it’s tested??<span> </span>So all of you reading my blog, if you think something isn’t right health wise, pursue it, as you know your body best.<span> </span>And thank you God for my healing!</div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com0tag:blogger.com,1999:blog-3553902936236291461.post-28682124670227370982011-03-23T19:15:00.000-07:002011-03-23T19:15:31.108-07:00Oh the Fun<!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:AllowPNG/> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves/> <w:TrackFormatting/> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF/> <w:LidThemeOther>EN-US</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> <w:SplitPgBreakAndParaMark/> <w:EnableOpenTypeKerning/> <w:DontFlipMirrorIndents/> <w:OverrideTableStyleHps/> </w:Compatibility> <m:mathPr> <m:mathFont m:val="Cambria Math"/> <m:brkBin m:val="before"/> <m:brkBinSub m:val="--"/> <m:smallFrac m:val="off"/> <m:dispDef/> <m:lMargin m:val="0"/> <m:rMargin m:val="0"/> <m:defJc m:val="centerGroup"/> <m:wrapIndent m:val="1440"/> <m:intLim m:val="subSup"/> <m:naryLim m:val="undOvr"/> </m:mathPr></w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" DefUnhideWhenUsed="true"
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<div class="MsoNormal">OK, it’s crazy around here.<span> </span>Delaney is finally getting her first teeth.<span> </span>She’s over 11 months old so it’s certainly time; however with these teeth apparently she’s also going to have a tough time.<span> </span>She had a slight cough and runny nose yesterday along with swollen gums.<span> </span>Today she has a cough, runny nose, fever, irritability, and swollen gums.<span> </span>Oh the joy!<span> </span>When we got back to the room after touring Pearland, the place we used to live, her temp was 103.<span> </span>So we gave her ibuprofen and a lukewarm bath and now it seems to be going down.<span> </span>She’s not lethargic, so that is a plus, and she wants to play, so we’re happy there: but, poor little baby.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">To make matters worse, since she’s running a fever, I don’t think she’ll be cleared to visit MDA tomorrow with us.<span> </span>We have to have her cleared daily in order for her to be at the facility. I completely understand the requirement; it’s just unfortunate that she has to encounter teething during this already stressful time.<span> </span>Tomorrow is just my follow up mammo and ultrasound in the morning along with a possible biopsy. Then its genetic counseling, so Stephen can stay in the hotel with her tomorrow, as Mom wants to hear about the genetic aspect since it could affect her or my brothers, too.<span> </span><span> </span>Friday though, well that is another issue.<span> </span>We are praying that Delaney will have those teeth in by Friday so she can be cleared as Friday is a big day since we see the surgeon and I’d like both Mom and Stephen there because a lot of decisions will be made. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I just can’t take all this fun! <span> </span>Of all the times for her to cut her first teeth!! <span> </span>She’s miserable and it makes me miserable.<span> </span>But this too shall pass.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I also got a call and there isn’t an appointment for the radiology oncologist until Tuesday at 3.<span> </span>I was hoping we’d have things decided on Friday, but I guess not.<span> </span>Just more waiting; and that is not fun.<span> </span>Patience has never been my virtue and I just want to get this process started so I can see the light at the end better.<span> </span>I just wish they would have scheduled it all two weeks ago instead of waiting until I got her to decide on a PET scan and that I should see the radiologist.<span> </span>If they would have done that, I think I could have been seen this week.<span> </span>I still don’t have the PET scan scheduled, so I guess if I don’t hear about that before then I will ask tomorrow morning when I’m there.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I really felt they could have scheduled all these visits two weeks ago based on the initial referral as the info they have had is the same they received then, since apparently the BRCA 1 positive issue doesn’t affect my particular treatment for the actual cancer it’s more of the prophylactic that will be affected by this positive outcome. <span> </span>Thank you God for my healing.<span> </span></div>Miranda's Miracleshttp://www.blogger.com/profile/02577413497049431737noreply@blogger.com1